How to donate your bone marrow to cure a thalassemia patient

 
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According to the National Institutes of Health, 1 in 100,000 people throughout the world live with a symptomatic form of thalassemia. (1)

In today’s video (press play on my photo above), I speak with two representatives from “Be The Match” foundation.

“Be The Match” connects patients living with blood disorders (from leukemia to thalassemia) with bone marrow transplant donors in order to be cured of their disease.

The journey to be cured by bone marrow transplant can be a long one, but the procedure is much safer these days than it was in the past.

I encourage parents of children with transfusion-dependent thalassemia to speak with their medical team about transplant options.

If I was a kid again, knowing how hard life can get with thalassemia major, I would want my parents to help me decide the best course of action. To be honest, I would want a bone marrow transplant if I was a kid who had a donor that was a perfect match.

If every patient’s family member signed up for the program, they may not match for their family member, but they can match for somebody else.
— Gaytri Kapoor, Be The Match

It’s a scary thing to consider what could go wrong, but the potential for a cure is extremely high these days. Especially if you have a donor who is perfect match.

With that said, why not at least check to see if you have a suitable donor out there?

If someone you know has thalassemia and you’d like to donate to save a life, please contact Gaytri Kapoor, donor contact representative at Be The Match, by Phone: 281-780-1379; Toll Free: 1-888-482-5663; or by going to Join.bethematch.org/CureThal

The Boy Who Was Cured of Thalassemia Major

The little boy in the video below was matched with a bone marrow donor through “Be The Match” and cured of his beta thalassemia disease. Now he is healthy and living a normal life.

To your good health,

Josephine